C-Bugs Journey

SO much has happened since my last post.  We have been dealing with Bugs allergies and stuff.  Now we are facing another major issue in her life.  Ever since she was a baby she has been a "Picky" eater as it is called.  We were always told she would out grow it, but she has not.  Since the revelation of all her food allergies and her MRKH we are thinking they are all connected.  Currently she is in the 1% of her BMI.  Her Ferriton levels (which is part of her iron levels) are currently at 14 when normal range is around 37.  She has been low for the last year and a half and her amazing dr. has been monitoring it, we had hope when it reached 22, but this is lowest now.     Buggy is an amzing young lady, she is growing faster then her weight can allow.  Currently we are in the process of getting outside help for her.  There is no help available here in New Mexico so we have turned to Denver.  We have found some great drs. who are helping us find the correct process to help us d

Well this week marks the amazing 12 years we have had our bug in our lives.  She has been an amazing child.  So much has been going on in the last few months.  Some of our many great joys have been that she had a great school year and pulled a 4.0 gpa.  She is very smart.  About 2 months ago she went to go get an allergy skin test but they wouldn't give it to her because she was diagnosed with Asthma and we needed to get it under control before the testing.  So a few weeks later and feeling much better we did the skin test for the seasonal allergies and there was only 2 spots that weren't red and big.  So needless to say we are doing allergy shots right now, twice a week for now.  She is doing better with her allergies.     We have been going to a counselor about her eating issues, we have finally narrowed it down to atleast a daignosis.....she has an intense phobia of eating foods.  Trying new food or foods she is scared of is as real to her as anyone's fear of spiders, h

      My heart is breaking as I write this.  I think of my sweet little girl and the struggles we have ahead of us.  Last week we took her to the dr. because she was not feeling very well and she had some blood tests done.  Doc called me this morning with the results.  Not terrible but not great.  Her feretin is still low at 25 but up from the 19 a few a months ago.  Her calcium is still low and she is slightly dehydrated.  But over this weekend she has not been eating very much.  3/4 of a sandwich instead of a whole, half the pizza instead of all.  When we took her in she had lost 2 pounds since her last visit.  Her rashes are bothering her more when she is avoiding most of the allergies.  When I researched her BMI for this last appt. she was at 13.6% which is not even at 3%.  Last time she was at 14.5%.     After talking to the doc the final comment was that she was going to do some research to find a place we could take her for inpatient care.  My heart aches so strongly and the tea

Some days you wish you could curl up into a ball and let everything roll over you and forget about the harsh realities that are happening in your life.  We have had a lot of tears and hurdles to overcome.  How does one deal with the realities that your little girl has to face and those that she will face.  It is so easy to forget that she has MRKH and pretend that she has a normal future ahead for her, one filled with lots of normal things, then one moment in time brings back the harsh reality.  The other night she had a loose tooth that has been bothering her, well, after much coaxing and pursuasion and a lot of tears she agreed to let daddy pull the tooth.  She had her 2 cups (one for the tooth and one to use to rinse the blood out) and of course I was holding her hand.  That girl sure can squeeze, I then had that moment.  As she was squeezing very tightly the first thought that came to my mind was that I sure don't want to hold her hand when she is in labor, then the brick wall

So last week my husband and I visited with the counselor concerning c-bugs eating issues.  It is such an emotional and intensive issue.  I try to take each problem on their own, but the overall effect affects her emotionally and physically.  Our concern is that she is so texture sensitive to food and then to find her allergies it make it hard to have her eat properly.  She is tall for her age but very skinny.  She is just over 5' and weighs barely 70 lbs.  Our concern is that over the last 11 years her issue has been texture/sensory with food.  Now our concern is leading to the fact that because she doesn't eat it is becoming a lifelong habit.  Our next big step would be to take her to an eating disorder clinic.  It breaks my heart to even think about throwing that in to the equation.  She has come to like being skinny and finds she likes the look, so when does it click that not eating will keep her that skinny.  When doing her BMI she is 13.4 which is very low.  We visit with

Were does one begin when telling a story that doen't have the best end results.  I guess the beginning is the best place.  In September of 1999 I went to the dr. for my 12 week checkup and was devestated to learn I had miscarried a baby, so I had a d&c and the dr. told us we could try again as soon as we wanted.  So the middle of Oct. we found out we were pregnant again.  Because I had a blood clot with my first one I had to take Heprin shots twice a day so that meant to follow up with the dr as soon as possible.  So I made my apptment for 8 weeks which was the mon after thanksgiving.  So the weds before thanksgiving we were headed to lunch when I looked down and saw I was covered in blood.  Having had a miscarraige 2 months before I freaked out and rushed to the er.  After several test and exams they told us the fetus did not match up to the expected date and to go home and wait to miscaraaige this baby.  So devasted we headed home to wait for the weekend to pass so I could se