C-Bugs Journey

Well this week marks the amazing 12 years we have had our bug in our lives.  She has been an amazing child.  So much has been going on in the last few months.  Some of our many great joys have been that she had a great school year and pulled a 4.0 gpa.  She is very smart.  About 2 months ago she went to go get an allergy skin test but they wouldn't give it to her because she was diagnosed with Asthma and we needed to get it under control before the testing.  So a few weeks later and feeling much better we did the skin test for the seasonal allergies and there was only 2 spots that weren't red and big.  So needless to say we are doing allergy shots right now, twice a week for now.  She is doing better with her allergies.     We have been going to a counselor about her eating issues, we have finally narrowed it down to atleast a daignosis.....she has an intense phobia of eating foods.  Trying new food or foods she is scared of is as real to her as anyone's fear of spiders, h

      My heart is breaking as I write this.  I think of my sweet little girl and the struggles we have ahead of us.  Last week we took her to the dr. because she was not feeling very well and she had some blood tests done.  Doc called me this morning with the results.  Not terrible but not great.  Her feretin is still low at 25 but up from the 19 a few a months ago.  Her calcium is still low and she is slightly dehydrated.  But over this weekend she has not been eating very much.  3/4 of a sandwich instead of a whole, half the pizza instead of all.  When we took her in she had lost 2 pounds since her last visit.  Her rashes are bothering her more when she is avoiding most of the allergies.  When I researched her BMI for this last appt. she was at 13.6% which is not even at 3%.  Last time she was at 14.5%.     After talking to the doc the final comment was that she was going to do some research to find a place we could take her for inpatient care.  My heart aches so strongly and the tea

Some days you wish you could curl up into a ball and let everything roll over you and forget about the harsh realities that are happening in your life.  We have had a lot of tears and hurdles to overcome.  How does one deal with the realities that your little girl has to face and those that she will face.  It is so easy to forget that she has MRKH and pretend that she has a normal future ahead for her, one filled with lots of normal things, then one moment in time brings back the harsh reality.  The other night she had a loose tooth that has been bothering her, well, after much coaxing and pursuasion and a lot of tears she agreed to let daddy pull the tooth.  She had her 2 cups (one for the tooth and one to use to rinse the blood out) and of course I was holding her hand.  That girl sure can squeeze, I then had that moment.  As she was squeezing very tightly the first thought that came to my mind was that I sure don't want to hold her hand when she is in labor, then the brick wall